Overview
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Learn how to effectively advocate for yourself or a loved one during medical visits, especially when dealing with rare diseases like scleroderma, in this informative 37-minute video. Gain insights from a panel of experts, including a doctor, a pharmaceutical professional, and individuals living with scleroderma, as they share strategies for maximizing healthcare interactions. Discover tips on getting organized, approaching specialists, finding appropriate clinics, and navigating overwhelming periods in your healthcare journey. Explore valuable resources and personal experiences to empower yourself in managing your health and making the most of your doctor's appointments.
Syllabus
Introduction
Marie Rand
Matt Smith
Rayleigh
Marie
Thank you
Audience Questions
Resources
Personal Experience
Contacting Physicians
Getting Organized
Approaching Specialists
The Hub
The most overwhelming time
Thank you Rayleigh
Finding a Scleroderma Clinic
Finding a New Clinic
Final Thoughts
Taught by
SRFCURE