SRFCURE Courses

Patient Forum: Heart Disease in Scleroderma - 2024

Explore cardiopulmonary manifestations in systemic sclerosis, focusing on early detection and improved clinical outcomes through multimodality imaging and diagnostic algorithms.

• YouTube
• 36 minutes
• On-Demand
• Free Video

Non-Pharmacologic Management of Scleroderma - Patient Forum 2024

Explore non-pharmacologic approaches for managing systemic sclerosis symptoms, including Raynaud's, digital ulcers, GI issues, joint pain, and fatigue, with expert insights from Dr. Ankoor Shah.

• YouTube
• 44 minutes
• On-Demand
• Free Video

Understanding Scleroderma Vascular Biology

Explore scleroderma vascular biology, symptoms, and treatments with Dr. Tracy Frech. Learn about screening, pulmonary tests, and therapeutic applications for improved patient care.

• YouTube
• 1 hour 10 minutes
• On-Demand
• Free Video

CONQUEST: A Platform Clinical Trial for Scleroderma-Associated Lung Disease

Explore CONQUEST: an innovative platform trial accelerating scleroderma research, focusing on multiple therapies for SSc-ILD treatment.

• YouTube
• 43 minutes
• On-Demand
• Free Video

Juvenile Onset Systemic Scleroderma: What is it and How is it Evaluated and Treated

Explore juvenile systemic scleroderma with expert Dr. Torok: diagnosis, evaluation, and treatment options for this rare pediatric condition.

• YouTube
• 35 minutes
• On-Demand
• Free Video

Essentials of Clinical Trials - A Patient's Guide

Discover the essentials of clinical trials, including participation benefits, expectations, and processes, with expert guidance from Dr. Peter Merkel.

• YouTube
• 31 minutes
• On-Demand
• Free Video

How to Advocate for Yourself: Making the Most of Your Doctor's Visits

Learn effective strategies for self-advocacy during medical visits, focusing on rare diseases like scleroderma, with insights from healthcare professionals and community members.

• YouTube
• 37 minutes
• On-Demand
• Free Video

Scleroderma 101: Understanding Diagnosis and Treatment

Explore systemic sclerosis basics, diagnosis, symptom treatments, and the importance of research in understanding this complex disease.

• YouTube
• 39 minutes
• On-Demand
• Free Video

Developing Personalized Medicine Strategies in Scleroderma

Explore personalized medicine strategies for scleroderma, combining phenotype and biomarkers to predict disease progression and treatment response.

• YouTube
• 30 minutes
• On-Demand
• Free Video

Understanding Pulmonary Arterial Hypertension (PAH) - 2022

Explore Pulmonary Arterial Hypertension (PAH) with Dr. Roham Zamanian. Learn about symptoms, diagnosis, therapies, and research challenges in this informative webinar on a critical health topic.

• YouTube
• 49 minutes
• On-Demand
• Free Video

CAR T-Cell Therapy and Scleroderma - Today and Future - 2024

Explore immunological reset, B cell depletion, CAR T therapy, and precision immunotherapies for scleroderma treatment with expert insights on current and future approaches.

• YouTube
• 1 hour 3 minutes
• On-Demand
• Free Video

Scleroderma and Cancer: Implications for Cancer Screening and Therapy - 2024

Explore cancer screening recommendations for scleroderma patients, examining data links, discussing implications for recent diagnoses, and addressing challenges in cancer care.

• YouTube
• 31 minutes
• On-Demand
• Free Video

Stem Cell Transplant in Juvenile Scleroderma - Patient Forum 2024

Explore autologous stem cell transplantation for juvenile scleroderma, including protocols and outcomes at Pittsburgh Scleroderma Center with Dr. Kathryn Torok.

• YouTube
• 37 minutes
• On-Demand
• Free Video

Platform Trials: Accelerating Clinical Research in Scleroderma - 2024 Patient Forum

Explore platform trials and their impact on scleroderma research, focusing on CONQUEST, an innovative trial designed to rapidly advance promising treatments and identify agents for phase 3 trials.

• YouTube
• 31 minutes
• On-Demand
• Free Video