Health System Resilience in Rare and Complex Diseases: Identifying Determinants

Explore the critical topic of health system resilience in the context of rare and complex diseases through this informative 27-minute webinar presented by ERN ReCONNET. Delve into the increasing focus on healthcare system resilience among policymakers, prompted by technical failures during major health crises like the COVID-19 pandemic and Ebola epidemic. Examine how these disruptions affected various health system sectors, particularly impacting rare disease treatments. Learn about the unique challenges faced by vulnerable groups, such as rare disease patients, who require continuous care. Discover a newly launched survey aimed at identifying resilience determinants specific to rare and complex diseases. Gain insights from speakers Gelareh Emami, a PhD candidate in Sustainability, Innovation and Health Management, and Prof. Giuseppe Turchetti, an expert in Economics and Management of Healthcare, as they share their expertise on health system performance, quality management, and economic evaluation of healthcare technologies.