ERN ReCONNET Courses

Fatigue in Systemic Lupus: A LEAF Evidence-Based Update

1 review

Explore fatigue in systemic lupus erythematosus: causes, impacts, and innovative management strategies using the LEAF digital tool for personalized assessment and advice.

• YouTube
• 1 hour
• On-Demand
• Free Video

Multidisciplinary Diagnosis and Team Treatment in Idiopathic Inflammatory Myopathies

Gain insights into early diagnosis and multidisciplinary treatment of Idiopathic Inflammatory Myopathies. Explore the role of patient organizations and learn from expert rheumatologists and patient advocates.

• YouTube
• 47 minutes
• On-Demand
• Free Video

How to Explain the Antiphospholipid Profile to Patients

Understand antiphospholipid antibody test results using simple language. Learn to interpret and communicate aPL profiles effectively for patients with AntiPhospholipid Syndrome (APS).

• YouTube
• 34 minutes
• On-Demand
• Free Video

Optimization of Glucocorticoid Therapy for Long-Term Treatment in Connective Tissue Diseases

Optimize glucocorticoid therapy for long-term treatment in Connective Tissue Diseases. Learn personalized approaches, circadian considerations, and strategies to minimize adverse effects while maximizing therapeutic benefits.

• YouTube
• 48 minutes
• On-Demand
• Free Video

Explaining Systemic Sclerosis (SSc) to Family and Friends

Gain insights on explaining systemic sclerosis to loved ones from patient representatives and experts. Learn to communicate effectively about this rare autoimmune disease and its impact.

• YouTube
• 43 minutes
• On-Demand
• Free Video

Preconception Care in Patients with Connective Tissue Diseases

Explore preconception care for connective tissue disease patients. Learn to identify risks, optimize pregnancy conditions, and maintain offspring health. Gain insights from rheumatology experts.

• YouTube
• 47 minutes
• On-Demand
• Free Video

Everything You Always Wanted to Know About Ehlers-Danlos Syndrome (EDS)

Explore Ehlers-Danlos Syndrome (EDS) through expert answers to patient and caregiver questions. Gain insights on genetics, pathophysiology, and pain management from Prof. Fransiska Malfait's research.

• YouTube
• 1 hour 2 minutes
• On-Demand
• Free Video

Update on Hypermobile Type of Ehlers-Danlos Syndromes (EDS)

Explore hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders, including clinical boundaries, genetic diagnostics, and new findings on peripheral microcirculation and skin layers.

• YouTube
• 56 minutes
• On-Demand
• Free Video

2023 ACR/EULAR AntiPhospholipid Syndrome Classification Criteria

Explore the new 2023 ACR/EULAR classification criteria for AntiPhospholipid Syndrome (APS), providing a critical overview for healthcare professionals in vascular medicine and rheumatology.

• YouTube
• 48 minutes
• On-Demand
• Free Video

French Practical Guidelines for the Diagnosis and Management of Relapsing Polychondritis (RP)

Découvrez les directives françaises pour le diagnostic et la gestion de la polychondrite atrophiante. Apprenez les symptômes clés, les stratégies de traitement et les facteurs pronostiques de cette maladie rare et complexe.

• YouTube
• 1 hour 1 minute
• On-Demand
• Free Video

Unravelling 50 Years of Mixed Connective Tissue Disease (MCTD)

Explore the 50-year history, clinical aspects, pathogenesis, diagnostic criteria, and controversies surrounding Mixed Connective Tissue Disease (MCTD) with expert rheumatologists.

• YouTube
• 36 minutes
• On-Demand
• Free Video

Juvenile Onset Systemic Sclerosis: Insights on an Orphan Disease

Explore juvenile systemic sclerosis: clinical presentation, treatment, outcomes, and recent insights from international registry. Compare adult and juvenile forms, discuss management recommendations.

• YouTube
• 42 minutes
• On-Demand
• Free Video

10 Questions in Relapsing Polychondritis (RP)

Explore expert answers to top 10 patient questions about Relapsing Polychondritis, addressing key concerns and providing valuable insights for those affected by this rare condition.

• YouTube
• 52 minutes
• On-Demand
• Free Video

Childhood-Onset Lupus: Approaches for Adult Care

Gain insights into childhood-onset SLE, its impact on young patients, and strategies for lifelong management. Learn about challenges, outcomes, and best practices for supporting individuals with this severe condition.

• YouTube
• 59 minutes
• On-Demand
• Free Video

Characterization of Pain in Connective Tissue Diseases and Its Management

Explore different types of pain in connective tissue diseases, their origins, and personalized management approaches. Learn to distinguish between acute and chronic pain for effective treatment.

• YouTube
• 48 minutes
• On-Demand
• Free Video