Visual ODLs - Co-Designing Patient-Generated Observations of Daily Living to Support Data-Driven Conversations in Pediatric Care

Explore a 21-minute conference talk from the ACM CHI Conference on Human Factors in Computing Systems that delves into co-designing visual tools for symptom communication in pediatric care. Learn how researchers created a visual library of 72 sketched illustrations based on the Observations of Daily Living framework and insights from clinician interviews. Discover the findings from co-design sessions with chronically-ill teens and their parents, including how teens depicted symptoms as intertwined with personal and social identity narratives. Gain insights into the potential of collaboratively-generated, interactive storyboards as tracking and communication mechanisms for symptom management. Understand three ways these tools could enhance communication and coordination with informal and formal caregivers in pediatric care settings.