Overview
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Explore the family perspective on sudden death due to inherited arrhythmias in this 57-minute webinar, part of a three-part series presented by Ambry Genetics in partnership with the SADS Foundation. Gain insights from healthcare providers presenting sudden death cases and hear firsthand accounts from patients who experienced the sudden loss of a family member. Learn about the journey families undergo, including referrals, postmortem evaluations, genetic testing, and psychosocial challenges. Discover the importance of timely referrals, comprehensive family care, and education in managing inherited arrhythmias. Understand the keys to success in supporting affected families and access valuable resources for ongoing support.
Syllabus
Intro
Referrals
Postmortem Evaluation Objectives
Circumstances of Death
Past Medical History
Family Evaluation
Genetic Evaluation
Results
DNA banking!!!
Psychosocial
Challenges/Worries
Hardies Family History
Family Concerns
Family Needs
Timely Referral
Care for the Whole Family
Family Perspective
One stop shop
Education
Resources for Support
Keys to Success
Hardies Family Update
Thank You
Taught by
Ambry Genetics