Genetic Paternalism: Striking the Balance Between Expert Perspective and Patient Autonomy
National Human Genome Research Institute via YouTube
Overview
Syllabus
- Introduction
- An ethical framework for directiveness in genetic counseling practice Leila Jamal
- Sickle Cell Disease: A Marginalized Community in the Genomic Spotlight Ashley Buscetta
- Patient perspectives: how social and historical contexts shape patients’ needs Candace Henley
- Q&A Session
Taught by
National Human Genome Research Institute