Overview
Explore the potential impacts of universal genome sequencing at birth in this thought-provoking World Economic Forum panel discussion from Davos 2019. Delve into the ethical, medical, and societal implications of providing everyone access to their genomic health data. Learn from experts in biotech, healthcare policy, and bioethics as they debate the benefits and challenges of implementing widespread genetic sequencing for newborns. Discover how this technology could revolutionize personalized medicine, impact insurance practices, and raise questions about data ownership and privacy. Gain insights into the role of genetic counseling, the importance of data infrastructure, and the potential for empowering individuals with their genetic information. Consider the implications of machine learning bias, cost factors, and data sharing in the context of universal genome sequencing.
Syllabus
Intro
Panel Introductions
Can Everyone Have Their Genome Sequenced
What Does Genetics Tell You
Should Every Infant Be Sequenced
Genetic Counseling
Insurance
Data Ownership
Data Infrastructure
Empowering People
Norms Expectations
If Done Right
Audience Question
Context
Machine Learning Bias
The Inputs
Data Bias
Cost
Sharing
Taught by
World Economic Forum