A Patient-Driven Approach to Cystic Fibrosis Research - Webinar - Ambry Genetics

Explore a groundbreaking webinar on patient-driven cystic fibrosis research presented by Ambry Genetics. Discover how CysticLife pioneered a revolutionary approach to healthcare by empowering the CF community to design, plan, and fund their own innovative study on exercise as a treatment. Learn about patient-centered care, the concept of actively involving patients and families in healthcare decisions, and how it has evolved into patient-driven research. Gain insights into the study design, medical implications, and research goals of this community-led initiative. Witness a real-time demonstration of CysticLife's crowdfunding approach and understand how this model can inspire other patient communities to pursue meaningful research. Presented by experts Courtney Wheatley, PhD, Julie Desch, MD, and Ronnie Sharpe, this hour-long webinar covers topics such as the Research Advisory Board, research questions, snap polls, and personal experiences with CF. Delve into current therapies for CF, challenges, opportunities, and the potential impact of this patient-driven approach on the future of healthcare research.