CERTaIN: Patient-Centered Outcomes Research

Engaging Patients and Stakeholders in Patient-Centered Outcomes Research (PCOR)

• Patient and stakeholder engagement in research, principles and benefits
• Tips for engagement

Principles of Community-Based Participatory Research (CBPR)

• CBPR definition, principles, benefits and challenges
• CBPR versus traditional academic research

Shared Decision Making (SDM) in Cancer

• SDM models, definitions and myths
• SDM intervention effectiveness

Patient Decision Support Tools in Cancer

• Patient decision support technologiesand clinical guidelines
• Informed decision making, shared decision making and patient decision support technologies
• International Patient Decision Aid Standards collaboration

An Overview of Patient-Reported Outcomes (PROs) in Cancer

• How PROs differ from other outcomes
• Choosing PROs
• Study design and PRO components

Designing Surveys: Asking Questions with a Purpose

• Survey purpose and types
• Survey samples, question design and format
• Reliability, validity and sources of error

Qualitative Methods of Research

• Qualitative and quantitative data comparison
• Mixed methods
• Thematic content analysis

Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice

• Common dissemination and implementation research questions and outcomes
• Path of research to practice
• Diffusion of innovation and the consolidated framework for implementation research

The Role of Health Literacy inPCOR

• Health literacy and its importance and impact on health status outcomes
• Methods of assessing health literacy in PCOR

Cognitive Impairment and Participation in Research

• Capacity to consent to participation in research
• Ethical involvement of cognitively impaired subjects
• Involvement of surrogate decision-makers for impaired subjects

Behavioral Interventions inPCOR

• Research partnerships in behavioral interventions
• Fidelity and adoption