Science Didn't Understand My Kids' Rare Disease Until I Decided to Study It

Science Didn't Understand My Kids' Rare Disease Until I Decided to Study It

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Fear

12 of 24

12 of 24

Fear

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Science Didn't Understand My Kids' Rare Disease Until I Decided to Study It

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  1. 1 Intro
  2. 2 The worst Christmas
  3. 3 Backstory
  4. 4 Elizabeths rash
  5. 5 Elizabeths eyes
  6. 6 What do you know
  7. 7 Sharing
  8. 8 No systematic effort
  9. 9 Two major barriers
  10. 10 PXE International
  11. 11 Hardcore research
  12. 12 Fear
  13. 13 Genetic Alliance
  14. 14 Citizen scientists
  15. 15 Stakeholders
  16. 16 How do we make it
  17. 17 Take risks
  18. 18 My fear
  19. 19 Where does it come from
  20. 20 I love people
  21. 21 The enormity of our loving
  22. 22 The boundless capacity for love
  23. 23 I dont fear fear
  24. 24 My kids

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